Aplastic Anemia and PNH Basic Kit

The Aplastic Anemia and PNH Basic Kit provides patients with Paroxysmal Nocturnal Hemoglobinuria (PNH) or Aplastic Anemia, as well as their relatives and treating medical professionals, with a comprehensive, free information and orientation package. The aim of the Basic Kit is to clearly outline the often complex initial steps following diagnosis and to offer practical assistance. The Lichterzellen Foundation grants nationwide funding and enables both private individuals and public institutions to obtain the kit free of charge in an uncomplicated manner. As this is an ongoing funding opportunity, the Basic Kit can be ordered at any time—without financial contribution. The contents are designed to reduce fears and unanswered questions through structured materials and to promote dialogue between patients, relatives, and physicians.

The folder of the Basic Kit contains a guide for initial diagnosis, a fatigue diary, and tabular records for monitoring blood values over time. The package is complemented by a pillbox keychain for emergency medications, a PNH/AA patient passport, and an ID card in credit card format. Additional brochures from the foundation and a special pencil provide a basis for well-founded information. Through a download page, supplementary content such as expert videos, fillable tables (PDF/Excel), weekly summary sheets, consent forms for networking, and travel expense reimbursement forms are available. This compilation facilitates communication with specialized treatment centers and creates a reliable knowledge base for everyday life with PNH or Aplastic Anemia.