Care-for-Rare Awareness

The Care-for-Rare Awareness initiative supports projects and campaigns nationwide that significantly raise awareness of rare childhood diseases within civil society and the professional community. Through impactful media formats and participatory actions, stories of affected families and their everyday challenges are made visible. The goal is to foster understanding, attention, and appreciation for children with rare diseases and to strengthen social cohesion. In particular, projects are supported that open new perspectives through social, cultural, and media channels and encourage democratic engagement in the field of pediatric medicine.

Funding is provided to non-profit organizations, interest groups, and public-law institutions based in Germany, which apply as applicants for funding in the form of a grant. The initiative targets projects in the areas of media, culture & media, engagement for social cohesion/democracy, as well as work & social affairs. Submissions are accepted on an ongoing basis; there is no deadline. By offering continuous application opportunities, the Foundation for Children with Rare Diseases supports sustainable public relations work and opens up new perspectives on a topic that has often been underestimated to actors such as journalists and medical professionals.