Eva Luise u. Horst Köhler Stiftung für Menschen mit seltenen Erkrankungen

The Eva Luise and Horst Köhler Foundation for People with Rare Diseases was established in 2006 to promote research, networking, and public relations in the field of rare diseases. The foundation strategically invests in research projects, scholarships, symposia, and registries, as well as in the development of necessary care structures. As the initiator of the research initiative Alliance4Rare, it works closely with scientific partners, patient organizations, and funding institutions to make the "medicine of tomorrow" accessible to those affected by the "orphans of medicine."

Our goal is to advance the research and treatment of rare diseases and to give those affected hope for effective therapies. We support excellent research projects, connect stakeholders from clinics, science, and civil society, and advocate for specialized care structures. We believe in the transformative power of knowledge and innovation to sustainably improve the quality of life for people with rare diseases.

The funding activities are aimed at people with rare diseases and their relatives, physicians in specialist training (Clinician Scientists), researchers conducting innovative research projects on orphan diseases, as well as patient organizations and networks that promote research and care structures.