Lost Voices Stiftung
About the funder
The Lost Voices Foundation is a non-profit and charitable foundation under civil law based in Hanover, founded by affected individuals, relatives, and friends. It advocates for people suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a severe neuroimmunological multisystem disease. The foundation raises public awareness about ME/CFS, promotes biomedical basic research through its own scholarship program, and represents the interests of those affected in dealings with politics and healthcare.
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Mission & Vision
Our goal is to make the "lost voices" of ME/CFS patients heard again. We advocate for improved medical, social, and nursing care, promote urgently needed biomedical research, and create informational resources to raise awareness of this hitherto little-recognized disease.
Target groups
Our funding programs and activities are aimed at people of all ages, ethnicities, and genders who are affected by ME/CFS; relatives and friends of those affected seeking support and information; students and early-career researchers interested in ME/CFS research; as well as patient organizations, clinics, and researchers working to advance better diagnosis and treatment of ME/CFS.